RSD and Chronic Pain

Rating: 1 - I can do better 2 - Jury's out 3 - Pretty darn good 4 - Splendiferous 5 - Awesometastic (by 9 people)   Your rating: 1 - I can do better 2 - Jury's out 3 - Pretty darn good 4 - Splendiferous 5 - Awesometastic

Information for Chronic Pain sufferers and their Families. Do you know what RSD is ?

This lens isn't meant to be fun:
It is meant to really help you or a loved one avoid suffering needlessly.  

Do you suffer from chronic pain?
Do you have a family member or friend or know someone who does?
 Is the cause clear?   Are you sure?
Did You Know that it is estimated that millions of people's pain and symptoms go undiagnosed or misdiagnosed?    

In this lense, we will be posting information regarding Chronic pain,
with a focus on Reflex Sympathetic Dystrophy, RSD,
also known as CRPS Types I & II, Chronic Regional Pain Syndrome.
We will also be posting and linking to information regarding pain, and chronic pain in general.
 
Sadly, 1 in 2 people in America has some chronic condition.

Millions live with undiagnosed and undertreated chronic pain.
That means you or someone close to does.

I am an expert; I have lived with constant severe pain, and its consequences for many years.

It CAN happen to you. I was an unusually healthy ox of a guy.
President and founder of successful businesses, the go-to guy for many people, from my parents to children, from Little League teams to my Church.
Then one expectedly routine surgery caused this neurological nightmare.
It happens to millions and they never know why.........
Please read this lens for your sake. 
 

And.....Please do visit my other lenses.

Thank You

Do you (or someone you know) live with chronic pain? Could it be RSD/CRPS ? 

Suffering in pain is bad enough. Having the wrong--or no--diagnosis is intolerable.

What is RSD/CRPS?
Complex regional pain syndrome(CRPS) is a chronic pain condition that is believed to be the result of dysfunction in the central or peripheral nervous systems. Typical features include dramatic changes in the color and temperature of the affected limb or body part, accompanied by intense burning pain, skin sensitivity, sweating, and swelling. CRPS I is frequently triggered by tissue injury; the term describes all patients with the above symptoms but with no underlying nerve injury. Patients with CRPS II experience the same symptoms but their cases are clearly associated with a nerve injury.
CRPS can strike at any age. It affects both men and women.

Symptoms of CRPS:

The key symptom of CRPS is continuous, intense pain, which gets worse rather than better over time. CRPS most often affects one of the extremities (arms, legs, hands, or feet) and is also often accompanied by:
-"burning" pain
-increased skin sensitivity
-changes in skin temperature: warmer or cooler compared to the opposite extremity
-changes in skin color: often blotchy, purple, pale, or red
-changes in skin texture: shiny and thin, and sometimes excessively sweaty
-changes in nail and hair growth patterns
-swelling and stiffness in affected joints
-motor disability, with decreased ability to move the affected body part
-Often the pain spreads to include the entire arm or leg, even though the initiating injury might have been only to a finger or toe. Pain can often travel to the opposite extremity.

The symptoms of CRPS vary in severity and length. Some experts believe there are three stages associated with CRPS, marked by progressive changes in the skin, muscles, joints, ligaments, and bones of the affected area, although some

Stage one is thought to last from 1 to 3 months and is characterized by severe, burning pain, along with muscle spasm, joint stiffness, rapid hair growth, and alterations in the blood vessels that cause the skin to change color and temperature.

Stage two lasts from 3 to 6 months and is characterized by intensifying pain, swelling, decreased hair growth, cracked, brittle, grooved, or spotty nails, softened bones, stiff joints, and weak muscle tone.

In stage three the syndrome progresses to the point where changes in the skin and bone are no longer reversible. Pain becomes unyielding and may involve the entire limb or affected area. There may be marked muscle loss (atrophy), severely limited mobility have a Body-Wide case.

New Link List 

American Pain Foundation
A Great Resource
American Chronic Pain Association
Good resource for Chronic Pain Info
RSDSA
The Reflex Sympathetic Dystrophy Syndrome Association (Top Resource)
American RSD Hope
A Personal Favorite
International Research Foundation for RSD
Another Top Medical and RSD/Chronic Pain News Site

Had You ever heard of RSD or CRPS ? 

A key problem with RSD/CRPS is that it isn't well known.

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Books to Help you with Chronic Pain and RSD/CRPS 

Here is a list of good books on chronic pain,
including RSD, that Amazon carries.

Reader Feedback 

LAUREN MARTONE

I have had serious RSD for 5 years. As a lawyer and professor I was forced this year to give up work. I have been through countless in-patient and outpatient procedures and am now planning to go to Europe for help. In the last five years i have been hospitalized, on average 13-15 time per year. You name the treatment, I have tried. Some have helped temporarily, others not at all. I truly believe that Europe is my only help.

Posted February 24, 2008

flaminglacer

Glad to have you as a member of the Health and Wellbeing Group - drop by the Group HQ sometime and see what is there for you.

Posted July 27, 2007

Col

Hi, well done on a great lens that raises awareness to this debilitating disease. I must admit that I had never heard of RSD or CRPS, as a sufferer of Rhumatoid Arthritis (the symptoms sound familiar) I can sympathise with anyone suffering with he discomfort of chronic pain.
Colin
Auction Profits Unleashed

Posted July 20, 2007

M-Provencher

Sorry that you have to deal with something like this. I appreciate you giving us a little understanding about the condition.

Maggie

Posted July 19, 2007

MandSWhitehead

Great information Ed! Hope they find a cure for it soon!

Posted July 19, 2007

 
1 of 2 pages

Excellent article on re-humanizing patients from Reuters 

Maintaining Patients' Dignity Still Possible Despite Constraints on Time

Reuters Health Information 2007. © 2007 Reuters Ltd. NEW YORK (Reuters Health) Jul 27 - Patients are more than the illness they have, and failure to understand who they are and to treat them with respect is akin to "operating in the dark," a psychiatrist at the University of Manitoba writes in the BMJ for July 28. Even with the time constraints and tight budgets of today's healthcare systems, preserving patients' dignity is still possible, and is critical to keeping patients off the doorstep of despair, writes Dr. Harvey Max Chochinov. Dr. Chochinov writes that attitude, behavior, compassion, and dialogue -- "the A,B,C and D" of dignity-conserving care -- create an empirical framework for maintaining what he calls the core values of kindness, humanity and respect. He presents checklists of practical ways to implement the dignity-conserving care in everyday practice. First, and perhaps most importantly, he writes, clinicians need to recognize that their own attitudes and assumptions affect how they deal with patients and mediate their role in preserving patients' dignity. They need to examine their own attitudes toward and assumptions about patients, and to check their accuracy. For behaviors, he lists suggestions for conducting clinical examinations and facilitating communication that "enhance trust and connection between patients and their healthcare providers." Compassion "refers to a deep awareness of the suffering of another coupled with the wish to relieve it," the author writes. Through compassion, one recognizes the emotional impact that accompanies illness. Showing compassion may require no more than a gentle touch on the shoulder or any communication that "acknowledges the person beyond their illness." Finally, it's only through dialogue that a clinician can realize and understand the non-clinical aspects of a patient's life that affect the physician's approach to his or her illness. Dr. Chochinov is a palliative care specialist, but recommends his framework for every level of education and across all medical subspecialties, multidisciplinary teams, and allied health professions. BMJ 2007:335:184-187.

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